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Exhibiting Family-Centered Care

Key Insight 2: Work
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“There are four kinds of people in the world: those who have been caregivers, those who are currently caregivers, those who will be caregivers, and those who will need caregivers”

Rosalynn Carter as quoted by Mary Lund, 2005

Key Insight 2: Quote

     In Nursing care of the Older Adult (NURS313), I read “Toward Healthy Aging: Human Needs and Nursing Response.” Dr. Touhy and Dr. Jett (2012) explain that nearly 29% of the US population care for a chronically ill, disabled, or aged family member/friend. That means caregivers are present in one out of every five homes in the United States. Many caregivers are middle aged and considered “sandwiched” in caring for aging parents and their own children (artifact: notes on sandwich generation). I also learned about being "sandwiched" in Survey of Developmental Psychology (PSYC420). COVID-19 has impacted this caregiving role for many, but especially individuals in the older generation who rely on the concept of family-centered care. In family-centered care, the care is focused not only on the patient but the family as a unit. 

     In August of 2020, I witnessed the effects of the restricted interactions between patients and their families, beyond the classroom during my clinical rotations. Due to COVID-19, patients were limited to one visitor, if any. For instance, one evening I watched a father and a daughter FaceTime each other. The father was not doing well, and the daughter was hysterically crying. The patient ended up passing away that night. A nursing duty is to provide emotional support to the family of a patient who has passed. This COVID-19 limitation hindered the family-centered care that nurses are typically able to provide when a patient passes away. 

Key Insight 2: Text

     In addition to class and clinicals, I also work as a Nurse Extern, beyond the classroom. While working one night on an Intensive Care Unit (ICU), I had a patient that was not doing well. Halfway through the night it was determined that her organs were failing, so the family was informed. Due to the new Covid-19 restrictions, only two family members were allowed to visit at a time. This meant I walked each family member up to say their final good-byes. During these walks, I was given the opportunity to learn more about the patient and listen to stories the family would tell me. I never had a conversation with my patient, but I felt like she was a dear friend by the last walk. This is an experience I would have never been introduced to if the restrictions were not in place. In a reflection paper (attached below as a BTC artifact), I discuss how this shift has impacted my future career as a nurse. In my future nursing practice, I will prioritize family-centered care because I have seen the detrimental effects of when it is absent. 

     Family-centered care endorses the utilization of support systems and the patient on a psychosocial level. For example, in Psychiatric/Mental Health Nursing (NURS411) we learn that a goal for families is to learn effective ways to cope together and to maximize positive interactions among one another. In my previous example, a daughter had to say goodbye to her father over Facetime. That is not providing adequate family-centered care, and the repercussions of that could present in poor coping mechanisms of the family members leading to decreased resiliency

     During the COVID-19 pandemic, the hospital policies have continued to change, sometimes daily during the beginning of the pandemic. In March 2020, healthcare workers were unsure how to manage COVID-19, so the doors to the hospital closed to visitors. No one was allowed in unless it was truly an emergency. The hospital beds quickly filled with COVID-19 illness. The patients were not doing well, and besides nursing staff, these patients had no other means of support. There were many times when patients were passing away alone, similar to my previous example of the daughter and her father on FaceTime before he passed that night. COVID-19 has given frontline workers no choice than to become creative to allow more communication between family members. Regardless of creativity, this still provides a very reduced level of family-centered care. 

     I have learned that family or friend involvement in patient care promotes better health outcomes. When patients are admitted to the hospital, they are sick or hurt, so attempting to remember instructions from doctors or nurses is not an ideal situation. When someone is with the patient who can re-educate the patient when they get home, this will ultimately help reduce the risk of the patient being readmitted. Also, having a loved one with the patient promotes hopefulness, which also improves the outcome of the patient.

     Upon admission to the hospital, there is a section in the paperwork, that asks about discharge information. An important part of discharge planning is determining if the patient has an adequate support system to assist with providing care. During my beyond the classroom experience though clinical, I have learned how nurses provide resources that are applicable for different patient situations. When patients have altered mental status and are admitted to the hospital, nurses call the family for information. Therefore, when the patient is ready to be discharged, it is imperative there is someone to take the educational leaflets and knowledge to continue to care for the family member. This is why family-centered care is an important part of nursing and why I will implement this practice into my future nursing career.

Key Insight 2: Text

Beyond the classroom artifacts

Key Insight 2: List

Within the classroom artifacts

These are notes taken in Psych 420 (Developmental Psych). They explain the "sandwich generation" and how this generation feels. The sandwich generation takes on the care for not only their own children, but their aging parents as well. This is a behind the scenes explanation as to the importance of caring for the whole family as opposed to just the patient. The sandwich generation is a prime example of middle aged adults that are actively participating in family-centered care.

Key Insight 2: List
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